ADVERTISEMENT

Update on my son shoulder surgery

MontereyLion

Well-Known Member
May 29, 2001
19,976
3,274
1
So I am sitting here at Stanford Hospital, with time to blow, waiting for my son (Ryan) to come out of his second shoulder surgery, in 2 days. Long story. As some might know my son is Epileptic. It started right before his 21st birthday. Put him and us thru hell for a number of years. He had brain surgery at Stanford and has been Grand Mal Seizure free for over 2 years. He is now trying to get his life back on track and is going to Monterey Peninsula College, majoring in Psychology. All of those seizures caused his right shoulder to dislocate during the seizures. It got so bad he started dislocating his shoulder randomly as much as twice a day. Several months after his brain surgery he had shoulder surgery to fix the dislocations. It worked but at a cost. He had constant and severe pain and arthritis. Also he had limitations to his shoulder use. About 6 months ago it got so painful he had to do something. He was referred to Stanford. The same hospital that did his brain surgery. His first shoulder surgery was not done here. Long story short they did Hemicap shoulder surgery yesterday and I picked him up bright and early this morning and took him back home. We got a call today..... they said looking at his Xrays there was an issue and they needed for him to come back up for another operation to fix it. YIKES. At home and on the nearly 2 hour trip back up here he was in extreme pain. Enough to make a 29 year old man cry. When we got here they saw how bad he was and rushed him in. To alleviate is pain they gave him two pretty much back to back doses of pain meds in a pain pump that he is attached to. So he hadn't eaten since last night. He hasn't had anything to drink all day. They told him not to because of the planned second operation. He was in extreme...and I mean extreme pain...and was stressed out about another operation and the pain he was in. You guessed it, he had a Grand Mal in the operation prep room. Instantaneously there were 7 nurses by my side helping him. It was a good thing I was there. They were throwing out questions at me left and right about him. He made it thru it like he has all the others. Thing is he hasn't had one in 26 months. For me it was the sudden push of high dose pain medicatiin...along with stress, hunger, thirst and pain that caused the seizure. It's a one off. 45 minutes later we were having a pow wow with the surgeon and the head anesthesiologist. Should they operate this evening or wait for a better day. After talking it over all 4 of us voted to proceed with the operation. And now I wait. I haven't gotten a lot of sleep over the last 2 days. I have been making up for that by eating way too much. Sorry for the long story. Needed to type this up to get it out and help me burn some useless time. Merry Christmas to all and to all a good night.
 
So I am sitting here at Stanford Hospital, with time to blow, waiting for my son (Ryan) to come out of his second shoulder surgery, in 2 days. Long story. As some might know my son is Epileptic. It started right before his 21st birthday. Put him and us thru hell for a number of years. He had brain surgery at Stanford and has been Grand Mal Seizure free for over 2 years. He is now trying to get his life back on track and is going to Monterey Peninsula College, majoring in Psychology. All of those seizures caused his right shoulder to dislocate during the seizures. It got so bad he started dislocating his shoulder randomly as much as twice a day. Several months after his brain surgery he had shoulder surgery to fix the dislocations. It worked but at a cost. He had constant and severe pain and arthritis. Also he had limitations to his shoulder use. About 6 months ago it got so painful he had to do something. He was referred to Stanford. The same hospital that did his brain surgery. His first shoulder surgery was not done here. Long story short they did Hemicap shoulder surgery yesterday and I picked him up bright and early this morning and took him back home. We got a call today..... they said looking at his Xrays there was an issue and they needed for him to come back up for another operation to fix it. YIKES. At home and on the nearly 2 hour trip back up here he was in extreme pain. Enough to make a 29 year old man cry. When we got here they saw how bad he was and rushed him in. To alleviate is pain they gave him two pretty much back to back doses of pain meds in a pain pump that he is attached to. So he hadn't eaten since last night. He hasn't had anything to drink all day. They told him not to because of the planned second operation. He was in extreme...and I mean extreme pain...and was stressed out about another operation and the pain he was in. You guessed it, he had a Grand Mal in the operation prep room. Instantaneously there were 7 nurses by my side helping him. It was a good thing I was there. They were throwing out questions at me left and right about him. He made it thru it like he has all the others. Thing is he hasn't had one in 26 months. For me it was the sudden push of high dose pain medicatiin...along with stress, hunger, thirst and pain that caused the seizure. It's a one off. 45 minutes later we were having a pow wow with the surgeon and the head anesthesiologist. Should they operate this evening or wait for a better day. After talking it over all 4 of us voted to proceed with the operation. And now I wait. I haven't gotten a lot of sleep over the last 2 days. I have been making up for that by eating way too much. Sorry for the long story. Needed to type this up to get it out and help me burn some useless time. Merry Christmas to all and to all a good night.
For what it's worth my family is praying for your family that everything turns out well for all of you. we hope that the Christmas season brings you good fortune and special things do happen!
 
So I am sitting here at Stanford Hospital, with time to blow, waiting for my son (Ryan) to come out of his second shoulder surgery, in 2 days. Long story. As some might know my son is Epileptic. It started right before his 21st birthday. Put him and us thru hell for a number of years. He had brain surgery at Stanford and has been Grand Mal Seizure free for over 2 years. He is now trying to get his life back on track and is going to Monterey Peninsula College, majoring in Psychology. All of those seizures caused his right shoulder to dislocate during the seizures. It got so bad he started dislocating his shoulder randomly as much as twice a day. Several months after his brain surgery he had shoulder surgery to fix the dislocations. It worked but at a cost. He had constant and severe pain and arthritis. Also he had limitations to his shoulder use. About 6 months ago it got so painful he had to do something. He was referred to Stanford. The same hospital that did his brain surgery. His first shoulder surgery was not done here. Long story short they did Hemicap shoulder surgery yesterday and I picked him up bright and early this morning and took him back home. We got a call today..... they said looking at his Xrays there was an issue and they needed for him to come back up for another operation to fix it. YIKES. At home and on the nearly 2 hour trip back up here he was in extreme pain. Enough to make a 29 year old man cry. When we got here they saw how bad he was and rushed him in. To alleviate is pain they gave him two pretty much back to back doses of pain meds in a pain pump that he is attached to. So he hadn't eaten since last night. He hasn't had anything to drink all day. They told him not to because of the planned second operation. He was in extreme...and I mean extreme pain...and was stressed out about another operation and the pain he was in. You guessed it, he had a Grand Mal in the operation prep room. Instantaneously there were 7 nurses by my side helping him. It was a good thing I was there. They were throwing out questions at me left and right about him. He made it thru it like he has all the others. Thing is he hasn't had one in 26 months. For me it was the sudden push of high dose pain medicatiin...along with stress, hunger, thirst and pain that caused the seizure. It's a one off. 45 minutes later we were having a pow wow with the surgeon and the head anesthesiologist. Should they operate this evening or wait for a better day. After talking it over all 4 of us voted to proceed with the operation. And now I wait. I haven't gotten a lot of sleep over the last 2 days. I have been making up for that by eating way too much. Sorry for the long story. Needed to type this up to get it out and help me burn some useless time. Merry Christmas to all and to all a good night.
Monterey,

I’ve closely followed you son’s challenges with his seizures and post-surgical success. My sincerest thoughts and prayers are with you, your son and your family.

You are a good father and I’m certain that your son appreciates you being there for him.

If there’s anything you need from me or the BWI/McAndrew Board, please don’t hesitate to ask.
 
Wow, Monterey. Ryan, your family, and you have my deepest sympathies. A situation like you're encountering would suck at any time during the year, but it's certainly not much fun over the holidays.

Stanford Hospital has an excellent reputation. Here's hoping that they work their magic on Ryan.

Ryan, your family, and you are in my thoughts and prayers, and will be so throughout the holidays.

Keep us posted.
 
So I am sitting here at Stanford Hospital, with time to blow, waiting for my son (Ryan) to come out of his second shoulder surgery, in 2 days. Long story. As some might know my son is Epileptic. It started right before his 21st birthday. Put him and us thru hell for a number of years. He had brain surgery at Stanford and has been Grand Mal Seizure free for over 2 years. He is now trying to get his life back on track and is going to Monterey Peninsula College, majoring in Psychology. All of those seizures caused his right shoulder to dislocate during the seizures. It got so bad he started dislocating his shoulder randomly as much as twice a day. Several months after his brain surgery he had shoulder surgery to fix the dislocations. It worked but at a cost. He had constant and severe pain and arthritis. Also he had limitations to his shoulder use. About 6 months ago it got so painful he had to do something. He was referred to Stanford. The same hospital that did his brain surgery. His first shoulder surgery was not done here. Long story short they did Hemicap shoulder surgery yesterday and I picked him up bright and early this morning and took him back home. We got a call today..... they said looking at his Xrays there was an issue and they needed for him to come back up for another operation to fix it. YIKES. At home and on the nearly 2 hour trip back up here he was in extreme pain. Enough to make a 29 year old man cry. When we got here they saw how bad he was and rushed him in. To alleviate is pain they gave him two pretty much back to back doses of pain meds in a pain pump that he is attached to. So he hadn't eaten since last night. He hasn't had anything to drink all day. They told him not to because of the planned second operation. He was in extreme...and I mean extreme pain...and was stressed out about another operation and the pain he was in. You guessed it, he had a Grand Mal in the operation prep room. Instantaneously there were 7 nurses by my side helping him. It was a good thing I was there. They were throwing out questions at me left and right about him. He made it thru it like he has all the others. Thing is he hasn't had one in 26 months. For me it was the sudden push of high dose pain medicatiin...along with stress, hunger, thirst and pain that caused the seizure. It's a one off. 45 minutes later we were having a pow wow with the surgeon and the head anesthesiologist. Should they operate this evening or wait for a better day. After talking it over all 4 of us voted to proceed with the operation. And now I wait. I haven't gotten a lot of sleep over the last 2 days. I have been making up for that by eating way too much. Sorry for the long story. Needed to type this up to get it out and help me burn some useless time. Merry Christmas to all and to all a good night.
God bless your son.Wish him the best of luck now and in the future.Hope you and your family can have a great holiday
 
God bless you both. You & he have been through a lot. Hopefully they can fix whatever the issue is that they found in the xray and he can be pain free going forward. Hope he gets out of there soon so you can enjoy Christmas together at home.
 
So I am sitting here at Stanford Hospital, with time to blow, waiting for my son (Ryan) to come out of his second shoulder surgery, in 2 days. Long story. As some might know my son is Epileptic. It started right before his 21st birthday. Put him and us thru hell for a number of years. He had brain surgery at Stanford and has been Grand Mal Seizure free for over 2 years. He is now trying to get his life back on track and is going to Monterey Peninsula College, majoring in Psychology. All of those seizures caused his right shoulder to dislocate during the seizures. It got so bad he started dislocating his shoulder randomly as much as twice a day. Several months after his brain surgery he had shoulder surgery to fix the dislocations. It worked but at a cost. He had constant and severe pain and arthritis. Also he had limitations to his shoulder use. About 6 months ago it got so painful he had to do something. He was referred to Stanford. The same hospital that did his brain surgery. His first shoulder surgery was not done here. Long story short they did Hemicap shoulder surgery yesterday and I picked him up bright and early this morning and took him back home. We got a call today..... they said looking at his Xrays there was an issue and they needed for him to come back up for another operation to fix it. YIKES. At home and on the nearly 2 hour trip back up here he was in extreme pain. Enough to make a 29 year old man cry. When we got here they saw how bad he was and rushed him in. To alleviate is pain they gave him two pretty much back to back doses of pain meds in a pain pump that he is attached to. So he hadn't eaten since last night. He hasn't had anything to drink all day. They told him not to because of the planned second operation. He was in extreme...and I mean extreme pain...and was stressed out about another operation and the pain he was in. You guessed it, he had a Grand Mal in the operation prep room. Instantaneously there were 7 nurses by my side helping him. It was a good thing I was there. They were throwing out questions at me left and right about him. He made it thru it like he has all the others. Thing is he hasn't had one in 26 months. For me it was the sudden push of high dose pain medicatiin...along with stress, hunger, thirst and pain that caused the seizure. It's a one off. 45 minutes later we were having a pow wow with the surgeon and the head anesthesiologist. Should they operate this evening or wait for a better day. After talking it over all 4 of us voted to proceed with the operation. And now I wait. I haven't gotten a lot of sleep over the last 2 days. I have been making up for that by eating way too much. Sorry for the long story. Needed to type this up to get it out and help me burn some useless time. Merry Christmas to all and to all a good night.

Echo sentiments of others here - thanks for sharing and best of luck to your son and family this Christmas. Please report back as he gets better!
 
Update to the updated....the second operation was a success. He is in a private room. He has eaten and had plenty of water to drink. He has been on a special Keto diet over the last 2 years to help with his seizures. His pain is under control, for now. He is projected to get out Friday. Just in time for Christmas.
 
Update to the updated....the second operation was a success. He is in a private room. He has eaten and had plenty of water to drink. He has been on a special Keto diet over the last 2 years to help with his seizures. His pain is under control, for now. He is projected to get out Friday. Just in time for Christmas.

A Christmas Miracle! Now, get some sleep ;).
 
A Christmas Miracle! Now, get some sleep ;).
So they told me they would allow me to stay here tonight. In his room. When we got to his room they said they would bring a cot in for me to sleep on. Then about 20 minutes ago they said they are short on cots. Checks in the mail. We're working on it. Thing is it's a 2 hour drive home. It's 10pm... now what? Life's little curve balls. I was never good at hitting the curve in little league.
 
Monterey: That is one hell of a story. Will keep Ryan, and you, in my thoughts and prayers. Grand mal seizures. Wow.
 
  • Like
Reactions: 91Joe95
So they told me they would allow me to stay here tonight. In his room. When we got to his room they said they would bring a cot in for me to sleep on. Then about 20 minutes ago they said they are short on cots. Checks in the mail. We're working on it. Thing is it's a 2 hour drive home. It's 10pm... now what? Life's little curve balls. I was never good at hitting the curve in little league.
If I ever win the lottery or have a nice inheritance the first thing I'll do is donate some cots/recliners/sleeping conversions to our local hospital. I spent a week as a patient in June and their recliners were either broken or unavailable. On day two they removed the recliner from my room for another family and I never got it replaced til the last day. I didn't mind sharing but I needed one too since my movement was seriously restricted by massive blood clots. Just said a prayer for your son and family. May all the blessings of Christmas be yours.
 
What a story, Monterey. How can it be there are no cots? Ay, yi yi. My best to your family.
 
Last edited:
  • Like
Reactions: 91Joe95
Geez..... ML, my thoughts and prayers are with you as I sit here yet another sleepless night praying for my sons health, well-being and that he has a future, I will add you and your son to my prayers. Life is a crazy ride for those that struggle with complex and pervasive diseases.... and those of us that have loved ones that experience these diseases.

Prayers....
 
Third updated....at about 11pm a very nice nurse went looking for a cot for me. She came back with a neat fold out chair. Heck this thing is more comfortable then my own bed. I just want to say the nurses here have been great. That's all folks.
 
MontereyLion, I just wanted you to know I am praying for your son and family even as I'm typing.

Thanks for sharing this difficult situation. I just had significant surgery to repair shredding my shoulder after a catastrophic shoulder injury prepping for the state powerlifting championships. So I was sitting here feeling wimpy and whiney and sorry for myself and then your post brought me back to reality. While I know I probably won't be ever setting state records again, I should regain full use and range of motion. Perhaps more fly fishing in my future.

We all hope and pray your son emerges from this experience with complete healing and function, but also stronger as a person and family for having gone through such a difficult ordeal. Have a Blessed Christmas.
 
You are an awesome father. The rest is out of your control. I am in admiration of your dedication to your son. I pray I am never in the same situation but can only hope that I'd be half the father you are if the time comes.

Dilly dilly!
 
I have to say the care here at Stanford Hospital is exceptional. All of the Doctors and Nurses are on the same page and very well informed about my son specific case. My Mother in Law was at a rehab facility a few months back and I can not say the same for care there. Here at least when my son pushes the help button, someone responds. The logistic of running such a busy hospital efficiently intrigues me. Not just efficiently but also with heart. Thumps up the Stanford. Here's hoping they beat TCU.
 
I have to say the care here at Stanford Hospital is exceptional. All of the Doctors and Nurses are on the same page and very well informed about my son specific case. My Mother in Law was at a rehab facility a few months back and I can not say the same for care there. Here at least when my son pushes the help button, someone responds. The logistic of running such a busy hospital efficiently intrigues me. Not just efficiently but also with heart. Thumps up the Stanford. Here's hoping they beat TCU.

God Bless you MontereyLion, your son and all of those involved during this trying time,

So many have said so well, what we feel for you and your son, that it is best to echo their heartfelt sentiments.

Prayers for strength through the challenges and for wonderful results MontereyLion!
 
  • Like
Reactions: MontereyLion
ADVERTISEMENT
ADVERTISEMENT